A Social Platform for the Rare Disease Community
Connecting individuals across the globe, creating meaningful relationships and building a powerful community
SharedGenes is a social network for individuals affected by rare diseases, fostering a supportive community
It provides a platform for individuals to share their experiences, connect with others facing similar challenges, and access valuable support resources
About us
SharedGenes was founded by Marshall Gould and Isaac Tolley, who both hold BSc and MSc degrees in science-related fields from the University of Oxford and University College London (UCL). During their studies, they became deeply aware of the isolation and social challenges faced by individuals living with chronic illnesses. Together, they are building a platform that connects people with shared diagnoses and experiences and fosters a supportive community where no one has to face their struggles alone.
